What is this on my head???

Oh boy - what is this on my head? My mom takes me to so many doctors and this last doctor we went to put this on my head. Did anyone tell her that it is hard plastic and not very comfortable? And she never takes it off my head except to give me a bath because my head stinks - well duh - did you notice the sweat dripping down my face? This thing is not so cool. Mom says I will have to wear it for a few months until my head evens out. Maybe I should have listened to her when she told me to turn left or I would end up with a helmet. Maybe Moms do know what they are talking about once in a while. Do you think I should believe her when she tells me to eat my vegetables too? I think I will start to listen to her. This is a picture of my before head......
See how my right side is flat and my left side is not? That's because I really like to look to the right. In a few months I will be able to show you an after picture and hopefully my head will look wonderful. I would have preferred to get a nice flat screen TV but I guess I will have to settle for the helmet.

Also, I went to the cardiologist last Monday and guess what he told me? He said I am looking good, gaining weight and my oxygen saturations are high enough on room air that I no longer have to wear oxygen during the day. I still have to wear the oxygen at night but that is OK with me - I am asleep and it really doesn't bother me. Mom says I am much easier to take around now that I am not attached to the oxygen all the time. If we want to run to the store real quick into the car seat I go and we are ready! No more changing to the portable oxygen, making sure we have enough oxygen and then dragging around the oxygen in the store. I'm glad the oxygen is gone during the day...but I kind of miss the tubing because I liked to play with it alot. Now I just play with my rattles and link-a-doos which are pretty fun too.

I am still working really hard at sitting up all by myself. I am getting closer but still need to strengthen my ab muscles a little more. I am also eating more by mouth - tonight I ate a whole Gerber Number 1 bottle of squash - it was yummy (see I am listening to my Mom and eating more vegetables - yay for me!!).

I am also recovering nicely from my surgery. I go back to the urologist for a post op check up next week. Boy I see a lot of doctors....I'll keep you updated on how I am doing. Thanks for reading my blog and for praying for me to overcome some huge obstacles. Now if only I could get out of this helmet........