June 16 - Cardio report

Hello everyone,

I can't believe it's been a week since our last post. Of course, we've been busy. I finished my Master's program and Kristi has been learning medical stuff and could probably pass off as a nurse!

Carter had his appointment with his cardiologist today and things are moving well. We won't see the cardiologist until July 14th now. Also, we are able to up his feeds from 25 to 27ml/hour which also means one of his meds increases from 6.25 to 7.5ml per dose. Sadly, it is the one he hates and makes him gag. Lucky us!

He seems to be doing well and the cardiologists seemed to think we're good to wait for a month as long as we continue to see his pediatrician. If something comes up, they'll begin scheduling for heart surgery. We do have to have a blood test on Wednesday to see how his 7.5ml dose is affecting his kidney outputs. (side effect of the diuretic) It looks like as long as Carter is doing well, heart surgery will delay so maybe August/September at this point. It's ok to move the date for now but we'd also like to get it done but everything is happening for a reason so we'll be patient.

We're still meeting his pediatrician fairly regularly for the time being and see where we end up.

That's all for now.

Love,
Alan & Kristi