Happy Birthday to Carter who is 8 weeks old today!
We've got him stable on oxygen and mostly on his feeds. We still can't come home with Arginine, a medicine for his kidneys but were working on it.
Carter has an echo scheduled for tomorrow as well as some blood tests and a test on his kidneys (something about being pH-balanced) which is what the Arginine helps to balance. We should know in the next day or so what the results are.
Carter also weighs 4.5 kilos and they finally said they want him to be 5.0 kilos to get ready for surgery so we're hopeful that his heart surgery comes sometime in June. We'll have to see.
If he does come home, we're trying to see if we can get a backpack and portable feeding pump and oxygen tank to make it easier to transport him. We also need to pass a CPR test at the hospital and also a car seat test.
So, 56 days and 2,520 miles later, we're closer as we've ever been and we'll see what this week brings.
Thanks for all of your thoughts, prayers, gift and support. It has truly helped us get through this difficult time managing two houses. The one we live in and room 3006 at PCMC.
Love,
Alan & Kristi
More pictures to come shortly...
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3 comments:
Hi Alan and Kristi!
I found your blog through Lauriann's blog, who found you through Danielle! Now I will be able to keep updated on Carter! Check out Lily's blog. We have fun with this. If you want me to add you to the UDSF blog site let me know. It's a fun support group!
Suzie - Lily's mom
Happy Birthday Carter !
Alan & Kristi ,
When Riley was on oxygen I had a bag that praxair let me use to put the portible oxygen tank tanks in when I had to take riley to the doctor. I found out that you have to ask for the bag because they do have them . if praxair does not have them try IHC home health.
hope this helps ....
Lauriann
Dear Alan, Kristi, Parker, Ashleigh and Carter,
Thankyou, so much for sharing this amazing journal with us. It has been incredible to read and learn about your precious boy. What a gift he is to you and your family. I am sure that every day brings joy and sorrow all wrapped together, but the joy will always win in the end. Our prayers are with you, always. We think of you often. Sincerely, the Richards'
Please continue to keep us informed and let us know how we can help. We truely love you.
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