May 12 Update (day 42)

Hello everyone,

Carter is doing somewhat better. He has these "fluke" fevers (one of his regular "cares" the nurses provides throughout the day includes temperature taking) where his temperature spikes above 38.0' Celsius. (about 100 degrees). He has had this three times over that last few days. Monday morning, they took blood and urine samples as well as spinal fluid to rule out an infection and meningitis.

We are working with his PCMC pediatrician to schedule a consultation with us, the pediatrician, the cardiologists and thorasic surgeons and social worker to develop a long range plan in preparation for his heart surgery and recovery. The cardiologists and the surgeons meet each Wednesday to discuss patients. We were hopeful that Carter would be at the top of their list this Wednesday but one told us they will postpone him to next Wednesday because of his fevers. Our concern has been the fever and samples have not shown any infection which we why we believe they are "fluke" fevers. We're meeting the pediatrician today to see if we can schedule this consultation for this Wednesday with the docs.

It seems to us and a few of his doctors that the holes in his heart are the cause of his liver, sulfates, breathing, and occasional lack of alertness. We'd like to address this sooner rather than later. The closer he gets to his 2-month birthday, the harder it will become for his heart to keep up with his needs.

We appreciate all of your prayers, thoughts and support.

Love,
Alan & Kristi