Tuesday, April 22, 2008

April 17 Post

Hello again,

Trisha is back as his nurse tonight. She was Carter's first nurse for the first two days. She just adores him and she noticed changes with him since she last saw him on April 2. She has been on vacation since that second night and tonight is her first night back and she got him again. It was nice to hear her say all the changes she has noticed with Carter. (She last saw him on the oscillating ventilator.)

He seems to be breathing better and a tad slower. Oxygen is still at 3 litres at 22%. Kristi said they'd be performing a echocardiogram weekly to make sure the PDA closes. He is taking reflux medicine as well as a diuretic to rid excess water from his body. He still is having a hard time gaining weight because of the diuretic but they are kind of expecting that. He weighed 3.6 kilograms tonight (just shy of 8 lbs) His bilirubin went back up again so it seems to go up, go down and go up like a roller coaster.

We'll send more updated pics tomorrow. We're going up tomorrow to spend time with all the docs, nurses and therapists (oh my) and hopefully be there for "rounds."

Some interesting reads for those interested on stuff we've been hearing about and some of Carter's medical needs.

G-Tube (feeding): http://en.wikipedia.org/wiki/G-Tube
PDA (heart): http://en.wikipedia.org/wiki/Patent_ductus_arteriosus
Edema (swelling): http://en.wikipedia.org/wiki/Edema
Bilirubin (jaundice): http://en.wikipedia.org/wiki/Bilirubin
GERD (reflux): http://en.wikipedia.org/wiki/Gastroesophageal_reflux_disease

Thank you so much for your prayers, love and support.

Love,
Alan & Kristi

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